RespiteMatch.com Health Blog

The decline into paralysis was one of the greatest challenges of my battles with ALS. Losing independence is a physical struggle as well a mental challenge. Before going on disability my job required extensive travel. I was fortunate to work with a knowledgeable occupational therapist that provided me with several assistive tools that prolonged independence. I used a dressing stick, a device to put on socks, a tool to button buttons and a long shoe horn. In the shower I used a washcloth bag that had a Velcro strap to hold it around my wrist. I would put my hand in the bag with a bar of soap. I definitely recommend attending an ALS clinic. If a clinic is not possible then a rehabilitation hospital. All of these products can be purchased without a prescription at http://www.sammonsprestonrolyan.com/
As for the mental challenges of losing independence, letting go of a wanted way of life was most difficult for me. I fought to hang on to the old life and resisted the many changes. I really pushed the envelope as a result took many dangerous falls and endangered my life. Looking back I would maintain the same hard headed determination, but be more receptive of assistive tools and adaptive equipment. I would also try not to fight the changes so much and redirect all of my energies toward a solution to the challenge at hand. I would ask for and accept help sooner. While this has been a difficult journey beyond my imagination, I have been the beneficiary of many tremendous blessings and had the opportunity to see the very best in others. This damn disease has also challenged me to find the best in myself. While I do not always display the best behavior, decisions, actions, etc., sometimes far from it. I continue to strive to better myself.

Unfortunately, until a cure can be discovered ALS is going to progress, faster for some slower for others, Fighting the inevitable will only waste energy and create frustration; instead, become proactive in your care and the challenges you are facing. So far I have found solutions for all of the challenges I have encountered that enable me to live as independently as current technology allows. Seek out knowledgeable individuals until you find a satisfactory solution. I am a firm believer in if there is a will there is a way.

All the best,
David dx’88